Fighting Parkinson’s, and taking control of your life

You each are the expert of our own Parkinson’s. You know your individual Parkinson’s better than anybody. You are the ones living in your Parkinson’s body, thinking with your Parkinson’s mind, and feeling with your Parkinson’s soul. So, if you are the experts of your own Parkinson’s, why are you unconditionally and unquestionably following the advice of people who never have lived in a Parkinson’s body or thought with a Parkinson’s mind or felt with a Parkinson’s soul or ever assisted a single person reverse their Parkinson’s? There is only so much they can tell you, and their story begins with, “Once upon a time, you got this disease that has no cure….” It doesn’t have to be this way! Trust in yourself! Take control of your life!

Lori Reimuller did not believe it had to be that way for her son, Robbie, who had epilepsy. Their story is chronicled in the movie “…First Do No Harm.” Here is the synopsis posted on the Internet Movie Database Website:

“When Lori Reimuller learns that her young son Robbie has epilepsy, she first trusts the judgment of the hospital staff in how best to bring it under control. As Robbie’s health slides radically downhill, however, she becomes frustrated and desperate, and so does her own research into the existing literature on treatments. When she decides to try an alternative treatment called the Ketogenic Diet, devised long ago by a doctor from Johns Hopkins, she is met with narrow-minded resistance from Robbie’s doctor, who is prepared to take legal action to prevent Lori from removing him from the hospital. This movie is an indictment of those in the medical profession who discuss only the treatment options they favor. Several of the minor characters are portrayed by people who have been not just helped, but cured by the Ketogenic diet.”

If Temple Grandin’s mother would have followed the advice of the doctors who diagnosed the non-talking 4-year-old with Autism, Temple would have been institutionalized for life. Temple’s mother decided to follow a different path for her daughter. Instead of being institutionalized for life, Temple earned her undergraduate degree, Master’s degree, and PhD, revolutionized parts of the cattle industry, and is a spokesperson and advocate for how to deal with Autism. Her story is chronicled in the movie, “Temple Grandin.” Here is the synopsis posted on the Internet Movie Database Website:

“Biopic of Temple Grandin, an autistic woman who overcame the limitations imposed on her by her condition to become an expert in the field of animal husbandry. She developed an interest in cattle early in life while spending time at her Aunt and Uncle’s ranch. She did not speak until age four and had difficulty right through high school, mostly in dealing with people. Her mother was very supportive as were some of her teachers. She is noted for creating her ‘hug box’, widely recognized today as a way of relieving stress and her humane design for the treatment of cattle in processing plants, even winning an award from PETA. Today, she is a professor at Colorado State University.”

These two movies come with my highest recommendation. They are true stories of children faced with treatment options for their diseases that had no happy endings at all. In each child’s situation, their mother stepped forward and said, “It doesn’t have to be this way!” They walked the path less traveled, they faced the scorn of those who wanted them to follow the conventional route, they were all alone in their quest for a different outcome than the outcome put forth by the professionals. Along the way, they met others who saw their spark, who understood their plight, and who helped them keep the courage of their convictions in staying on their path…AND THEY ENDED UP WITH HAPPY ENDINGS…HAPPY ENDINGS THAT THE PROFESSIONALS TOLD THEM WERE IMPOSSIBLE TO ACHIEVE!!!

Beyond these stories, we have Richie Parker, whose video we all have watched on my previous post, Fighting Parkinson’s, and doing what you can do. And, last weekend, Sally and watched the movie The Intouchables. It is a true story about a quadriplegic who hires a former criminal from the French projects to be his caretaker — both men reach levels in life nobody could have expected when looking at where they started.

The one thing all of these people from all of these true life stories have in common is that you sense that the phrases, “I can’t” and “This is not possible” were removed from their journeys at the beginning of each of their journeys to a happy and joyful life.

Instead, I would imagine those phrases were replaced by “I will” and “This is possible.”

So, I ask each of you to look deep inside yourself and feel it, and then say it out loud:

I will recover! This is possible!

I AM WORTH IT!!!

Are you ready to take control of your life and your Parkinson’s? Are you ready to walk the path less traveled? Are you ready to maintain the courage of your convictions and fight Parkinson’s on a path to recovery? ARE YOU READY TO GO DOWN A PATH THAT CAN RESULT IN A HAPPY ENDING…A HAPPY ENDING THAT THE PROFESSIONALS TELL YOU IS IMPOSSIBLE TO ACHIEVE!

If we all go down the path together, we are not alone. We will have strength in our numbers and encouragement for each other.

You are worth it!

All my best,

Howard

 

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16 Responses to Fighting Parkinson’s, and taking control of your life

  1. Marilyn Murray says:

    Just what I needed to hear after my recent challenges – you are right on the mark again. for me it is a slow and evolving process, every day brings new challenges and insights . With the support of our group and you I know it will happen and I am excited about that because I AM WORTH IT. thanks Howard, Marilyn

  2. judy says:

    so inspiring and encouraging and uplifting!…thank-you, Howard, for the sacrifices
    you have made and continue to make to get the word out….you are a God-send!…judy

  3. Kay Disbrow says:

    Thanks for the encouragement, the sense of community is lovely.

  4. Helen says:

    Phew more inspiration. Thank you Howard. I know it’s a matter of time till I am more well again free of Parkinson’s. Cheers everyone xx

  5. bhavna shah says:

    perfect Howard, well said especially the first para.

  6. Peta Gibson says:

    Im grateful for your positive input. I need it to keep on track. Is there a way to contact others on a forum? I havent met anyone who has rejected the drug route…it would be nice to have more contact to encourage/ inform each other. Thanks.

    • JIMMY says:

      Peta is my pleasure to greet all the people in this forum and thanks Howard for his support, his words so encouraging, that every day gives us strength to continue our way to recovery,
      We are very special group here with the same goal and it is wonderful to know that we have this forum to share our experiences through the road to recovery. although some find it easier to choose the path of drugs.
      I’m sure everyone who follows the recipe will have the joy of recovery.
      Peta I have my diagnosis and my first symptoms since 2005 and I’ve never taken drugs, I can make my life as normal, and I will be happy to get in touch with you. i started with the recipe one month ago
      thanks for all people here god bless all of you and special thanks to Howard.
      God bless you Howard

      • linda says:

        hi jimmy
        i also would like to get in touch with you jimmy.
        to find out about your drug free experience and living a normal life which is what i am also trying to do
        i look forward to hearing from you
        how do i get my email address to you?
        and many thanks as usual howard for a wonderful and inspiring post
        i also have to take back power and authority over my body
        which i have handed to others since my first neuro visit
        blessings to you all out there in our online community
        love and thanks
        linda

        i

        • JIMMY says:

          linda is a pleasure to greet and meet you here, of course I would be happy to talk with you.

        • Peta Gibson says:

          Id like to be in contact with you as well…ask jimmy for my email if you are interested. Best wishes peta

      • Peta Gibson says:

        Thanks Jimmy. Ill be in touch by email. Cheers, peta

  7. Mayarita says:

    Dear Howard, and other blog readers.
    You and your website are light in the darkness truely. Thank-you.
    I have been living with Parkinsons drug free since diagnosis in 2010 (symptoms began 2009), only having briefly tried the drugs one week under pressure.
    I began the 30 day challenge very on/off this May 2013, and have been doing some of the Recipe when I can since then. Having a small child , and separated from her father makes finding time difficult, along with exhaustion so I found Marie´s testimonial very encouraging as she was so honest about her difficulties. it gives me hope that I too may suceed.

    For the first time since my daughter was born, I have two weeks alone in my house- time for me, and what has become so obvious is that I cannot stop- my brain is going round and round, the most difficult part of the récipe being meditation! Instead of being relaxed now I have the time, I am thinkimg of how to fit all the things I must do into these two weeks! It is a big lesson, I will let you know how I get on.

    A question: a chicken and egg story: Would it perhaps be beneficial to give up precious sleep time in order to do some of the récipe? Although in the short term I may be more tired perhaps, longterm I would gain energy?
    Love to All

  8. Howard says:

    Thank you all for your comments. And, thank you for your dedication to taking control of your lives and your Parkinson’s.

    Mayarita asks:
    “A question: a chicken and egg story: Would it perhaps be beneficial to give up precious sleep time in order to do some of the récipe? Although in the short term I may be more tired perhaps, longterm I would gain energy?” Part of this depends on how much you sleep already and how long it takes you to do the Recipe. If one less hour of sleep would allow you to do one hour of the Recipe, then this would be a good idea. In the short term, you may feel less energy when first waking up, but yes, in the long term you will benefit with more energy. Also, if you are not doing the Recipe at all, then it cannot assist you in your recovery, so a little less sleep and doing the Recipe will help you. And, as your energy increases, you will not feel the need for so much sleep.

    Love and blessings to all,
    Howard

  9. Mayarita says:

    Thank-you so much for your encouragment, it will give me the strength I need to try it when I am back with my daughter and have so little time.

  10. Beverly Bowers says:

    Are we sharing Jimmy and Peta’s emails addresses? I would like them too to hear and gain knowledge if ok.

  11. Marilyn Murray says:

    it is helpful and supportive to talk with someone who is going through the same, or almost the same symptoms. I have had Pd since 2001 – 12 years now. As an RN with a nursing degree I was very compliant, taking my meds until I had a very bad reaction and knew that i would have to take charge. It is very difficult to get off the medications after such a long time but they do not serve my body any more. So i will be patient , and with support from Howard and others with PD I will recover. Marilyn

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